The show must go on.
Here we are post-diagnosis. In all honesty, it’s a blur. My mom constantly encouraged me to write things down to have later since I literally was “Paving the way” in the Autism World. I am glad I did too because as I read things I wrote before, I am like “Oh yeah! That happened!”
From here forward things may not be in order, but the knowledge from some may help with the understanding of others. ~ Just trust me ☺
Let’s talk about Trinity.
My daughter is in dual realities. Even to this day. There is a reality we all see and then there is a “Trinity World”. “Trinity World” is a constant theatrical with many voices, characters, songs, and dances. She is always on a stage performing. She hangs out there most of the time. To a random person, she looks like she is talking to herself, very dramatically though. She repeats her favorite parts over and over.
In “Trinity World” she takes her favorite parts from our reality and meshes them together with her happy place to make an adventure story. She is always coloring/drawing different people and places and at the age of 7, she wanted me to write words on her drawings to make a book. I encouraged her constantly to share what was going on in “Trinity World”. I would praise her creativity. I would always ask questions so I too could see what was going on in this duel reality.
Her first 30 books were made of stationary computer paper stuck together with old address labels my mom had given her to play with after she moved. This was her passion. It gave her so much worth seeing us all so interested and kept her creativity growing. The best part of all ~ now when she was talking to herself at the store or park or wherever, I knew what she was talking about.
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I want to mention here that I was told REPEATEDLY by the “Experts” that encouraging her in ‘Trinity’s World” was the biggest mistake I could ever make as a parent and that I should not acknowledge ANYTHING from it if I ever wanted Trin to be able to co-exist in society. ~ This is a whole Other blog post, but it is important to know for what I am about to share.
One day she was swinging and talking and I was nearby reading on a bench & I hear her performing a book she had just written and so I started saying the words and making the voices and she stopped swinging, turned, and looked at me. I then said that that is my favorite part because that Mister Neilson is such a stinker. She started to laugh & then we laughed together. She carried on swinging repeating the funny part over and over.
Did that just happen? Did I just pull her into my world by acknowledging her world? The girl who ignores all around her & doesn’t always respond to her name, just stopped her swing when her Momma started to play in “Trinity World”. Yes, and it only got better from there.
#ThursdayAutismAwareness
I will be sharing Autism testimony every Thursday.
I have 21 years of experience.
acurbsideprophet 