Category Archives: Uncategorized

School, ugh. IEPs, merp.

It’s that time of year again…

One of the biggest challenges I’ve had in my adult life is the struggle it is to have open communication with schools. Throw in IEPs and teachers who get personally offended when I ask questions and you have an armageddon.

This isn’t an “Autism” post per se because my youngest was diagnosed with Pervasive Development Disorder – PDD. Diagnosis is different from 20 years ago – now there are a million labels under the umbrella of “Autism Spectrum Disorder”.

School stuff causes me extreme anxiety. I’ve been doing IEPs for 17 years (my daughter got her 1st one at 3 years old and she is now 20). I know the policies and procedures and rules and laws. You would be surprised how many people are placed in a position they know NOTHING about and expect the parents to just sign. “Just sign it, it’s fine.”

  • I was supposed to give you a 10-day notice invitation to discuss the IEP, but I gave you 24 hours. “Just sign it, it’s fine.”
  • Even though I am about to wave your rights and say you declined to show. “Just sign it, it’s fine”
  • And we are going to leave everything the same as it was last year since you aren’t here to talk about it and that is what is easiest for us. “Just sign it, it’s fine.”
  • I have 60 more of these to do – and even though it’s MY JOB – which I wouldn’t even have if it wasn’t for your children, let’s just move along to the next kid. “Just sign it, it’s fine”

Oye Oye Oye~ !!!

Xander is going into third grade and this is the first year he would be eligible to be “held back”. He also has more testing this year than he has ever had in his school career. He is not mainstream (grade level skills) ~ YET. I knew all of this coming into the year and it had a great influence on my decision to walk away from my job. Last year it was difficult to run my business while spending hours a day making sure he comprehended the daily lessons. I know firsthand that early intervention is EXTREMELY important and while he is young, it is the most crucial time to get him caught up. My kids will always be my #1 priority and I couldn’t do it all.

The whole reason I share this topic today is that I had a chaotic morning with school stuff. Xander was moved to a different school a few days ago by accident which spiraled into a whole mess of Speech/Occupational Therapy and regular classes tornado cluster. I reached out to the new teachers, praying I wasn’t the annoying “in their face” parent. Even I hate that parent. But I had no idea what to do and it is my responsibility to get Xander into his classes. The new teachers were so kind. (enneagram 2 or 9’s I think LOL) and figured it all out. And they gave me a small bit of news that the “Just sign it, it’s fine.” lady NO LONGER works at the school! PRAISE GOD!

I walk into each school year with kindness in my heart, wanting to get along and work as a team to get my kids the best education that works for them, and I was terrified this mess would ruin these brand new relationships for the rest of the year.

My point: Hey Autism parents, I see you. I know sometimes it’s easier to get along and to “Just sign it, it’s fine.” and let them read to you what they think is best. But I am giving you permission to ask questions if things don’t seem right. I am cheering you on if you think there is an error OR you have a better idea and you bring it up! It is NOT disrespectful to want to understand what the plan is for our children and honestly, WE ARE NOT THERE TO MAKE FRIENDS. No matter how much we want people to like us, our responsibility is to our children, and their education – that trumps all. The IEP laws are in place to PROTECT our kids. To give the parents an opportunity to have a voice! We all know our children better than anyone else claims to. It’s wicked uncomfortable and causes mass anxiety, but God gave us these kids to protect, defend and set them up for success. I believe in you!

Faith

I have had an enormous response to my forgiveness journey. Thank you for reaching out and feeling all the feels with me. Thank you for supporting my intentional search for “Who I am, What I believe, and Where I am headed next.”

My “Biblical Faith” is new. I was in a small fishing town in Mexico for a retreat and who knew that one conversation and many nudges had me three weeks later, buying my first bible.

I am thankful that I wasn’t raised in Traditional religion. (Any religion) I have seen many bouts of “Inherited Faith” and can’t really wrap my head around it.

In my house growing up, I watched my Mom explore the world in search of Truth. I am thankful for exposure to many beliefs and for constantly being encouraged to find my own Truth.

I am slowly working my way through the Bible. It is not an easy read and I may have a spiritual advisor or two that I trust to break it down. I have also found many books & apps that really explain it all in a “For Dummies” type of way.

I share all this because so many of you “know” your truth. I see you. I am watching and learning and taking notes. As an enneagram 5, I am trying to gain as much knowledge as I possibly can.

Making a final decision on what my Truth is, is still up in the air – BUT I do know I have a minuscule existence in this world. I know that I am fully provided for and never alone. I know that everything is perfect although may be extremely uncomfortable and inconvenient.

I have seen many just drink the Kool-Aid and jump in head first. “I’m getting baptized!”, “I have joined a coven!”, “Metaphysics is where I belong”. I am so proud of you for being so SURE!

As for me, I’ve seen a woman I trust with my entire being literally travel the world in search of her truth and it wasn’t something she took lightly, and neither will I. No matter what faith I end up choosing, this spiritual journey has been incredible. I respect everyone who believes in something & dedicates their life to it. I will never judge the truth you hold.

My Autism Story, Part 4

My Beautiful Daughter.

The show must go on.

Here we are post-diagnosis. In all honesty, it’s a blur. My mom constantly encouraged me to write things down to have later since I literally was “Paving the way” in the Autism World. I am glad I did too because as I read things I wrote before, I am like “Oh yeah! That happened!”

From here forward things may not be in order, but the knowledge from some may help with the understanding of others. ~ Just trust me ☺

Let’s talk about Trinity.

My daughter is in dual realities. Even to this day. There is a reality we all see and then there is a “Trinity World”. “Trinity World” is a constant theatrical with many voices, characters, songs, and dances. She is always on a stage performing. She hangs out there most of the time. To a random person, she looks like she is talking to herself, very dramatically though. She repeats her favorite parts over and over.

In “Trinity World” she takes her favorite parts from our reality and meshes them together with her happy place to make an adventure story. She is always coloring/drawing different people and places and at the age of 7, she wanted me to write words on her drawings to make a book. I encouraged her constantly to share what was going on in “Trinity World”. I would praise her creativity. I would always ask questions so I too could see what was going on in this duel reality.

Her first 30 books were made of stationary computer paper stuck together with old address labels my mom had given her to play with after she moved. This was her passion. It gave her so much worth seeing us all so interested and kept her creativity growing. The best part of all ~ now when she was talking to herself at the store or park or wherever, I knew what she was talking about.

——

I want to mention here that I was told REPEATEDLY by the “Experts” that encouraging her in ‘Trinity’s World” was the biggest mistake I could ever make as a parent and that I should not acknowledge ANYTHING from it if I ever wanted Trin to be able to co-exist in society. ~ This is a whole Other blog post, but it is important to know for what I am about to share.

One day she was swinging and talking and I was nearby reading on a bench & I hear her performing a book she had just written and so I started saying the words and making the voices and she stopped swinging, turned, and looked at me. I then said that that is my favorite part because that Mister Neilson is such a stinker. She started to laugh & then we laughed together. She carried on swinging repeating the funny part over and over.

Did that just happen? Did I just pull her into my world by acknowledging her world? The girl who ignores all around her & doesn’t always respond to her name, just stopped her swing when her Momma started to play in “Trinity World”. Yes, and it only got better from there.

#ThursdayAutismAwareness
I will be sharing Autism testimony every Thursday.
I have 21 years of experience.

What Does my Home Say?

A pre-painting sketch of a home by Faith L. Sanders, July 1973

After sharing a picture & having many conversations about the cozy corner that I paint in, it reminded me of a poem my Grandmother wrote. We all live in a way that works for us. I remember having a trampoline & slide in our living room & an outdoor intended tent inside. Autism formed “Our way”. Because we are human, our minds might wander to wonder as to what others “think” of our space. I stopped thinking about this long ago – since I knew NOBODY who had 2 autistic children and so our needs were different. We made our house OUR HOME. A comfortable place for us to be a family… That is all that matters.

A poem by Faith L. Sanders, Tuesday, September 13th, 1983

When you come where I do dwell,

What messages does my house tell?

Fastidiously neat and bare~

Precisely placed is every chair-

Books in order on the shelf~

What does that say of myself?

Dishes undone in the sink;

Garbage gives a gentle stink-

Dustballs rolling on the floor –

Did you notice at the door?

Among the clutter and the clear

spaces, do sure signs appear

saying. “Welcome ~ Come have FUN” ~

or would you rather turn and run?

Whisk Me Away

The Gulf of Mexico at the Mississippi Coast.

This past weekend my husband whisked me away to Biloxi, Mississippi for one final recharge before the kids went back to school. Hence why I didn’t post Saturday & Sunday. It was a lovely weekend.

  • I walked the beach with my husband & put my toes in the water which was so warm.
James wrote our names in the sand.
  • I read the book Virgin River, which is HUGELY different from the Netflix series! There was definitely more GOOD in the books and waaaay less drama.
  • We ate delicious food. My favorite place was TBT – The Blind Tiger ~ a tropical oasis on stilts overlooking the Gulf. I also had the best milkshake ever at a Whataburger that was “Banana Pudding” flavor. I think I gained 5 pounds. (I KNOW I gained 5 pounds)
  • We stayed at the Beautiful Beau Rivage Hotel. It is one huge butterfly atrium.
  • I took many naps & splurged on room service.

It was a really nice getaway. It was just super HOT! I am not cut out to be a southern girl. I crave the deep woods, snow, and wearing lots of layers.

It’s always good to come home. My generous mother-in-law gave me a table easel for my paint-by-number addiction and I have a cozy area in my sitting room now to paint. I am currently working on a scene in London.

My little corner of creativity.

My life has never looked like anyone I have ever known so I am used to doing what works for me. Piles of books – The ones on the mantel are what I have read this year. (not including audio or digital) The ones on the stoop of the fireplace are my TBR. IYKYK. Of course, I have twinkle lights, artwork, and furry friends all around me. What you don’t see is Frank Sinatra, Louie Armstrong & Ella Fitzgerald softly playing in the background. I hope your space gives you warm fuzzies as mine does for me.

My Forgiveness Journey, Part Five ~ Stinky Fish.

Stinky Fish.

I am reading Kyle Cease’s book “The Illusion of Money” with my husband and it says “Your relationship with money is just a mirror to your relationship with yourself.”

In all honesty, this book isn’t really about Money, but more about the restrictions we place on ourselves to prevent us from being abundant in any form.

I start unpacking all the beliefs and reasons I have “decided” are why I am not as abundant as I would like to be.

  • Money is only for educated people.
  • Money is something to covet.
  • Money determines success.
  • Money doesn’t grow on trees.

Even as I type these now I see how ridiculous it all is! Then I start digging into WHY I think these things. SHOCKING NEWS AHEAD: it all stems from my two trauma issues I have been writing about this whole time!

I have been letting their opinions of my worthiness control my relationship with money. I didn’t do what I was “supposed” to do in life, so I will never be as financially abundant as they are.

***But, when it comes to “me-being-me unapologetically” in ANY other situation, I love myself whole-heartedly, unconditionally, and with pride. ~ While wearing a ginormous sparkling crown, and excessive amounts of body glitter.

I just keep getting tripped up on the conditional terms of the trauma situations.

I legit hear those people saying in my head: “There isn’t enough money or abundance in the world for people like you.”

Hear. Me. Now.

NOBODY gets to decide if I am worthy enough to be financially abundant or a good enough leader or smart enough or valuable enough EXCEPT ME!!!

I AM TAKING MY POWER BACK.

Fun Fact: I don’t eat fish or seafood. I am a Pisces and don’t eat my own kind 😉 So I have decided that when someone projects their opinion of my worthiness on me, or I am haunted by the lies I’ve let my brain repeat to me ~ I am just going to think of it as being offered fish. “No, Thank you. That’s not for me.”

They can eat as much as they want and share with whomever they want, but for me, it’s just fish and I can get by just fine without it. I’m not in a hateful place, quite the opposite actually. Sitting in my love of not eating fish. I am completely removing the power control from them and turning their beliefs into stinky fish.

It is this simple and ridiculous. Does it sting when people don’t like you? Sure, but it also clears a path for the universe to bring you to your Non-Fish eating tribe. Am I judging people who eat fish? Heck no! Not everyone likes everything and I am sure they might cringe at my hummus and veggie platter.

We get to decide our worth. YOU get to decide YOUR worth. You get to decide your success level! As an Autism Momma, small wins are BIG WINS. Why would I EVER let anyone diminish the hard work my kids do? Sometimes, just getting out of bed is a HUGE win for my friends with depression. You bet your bottom I will be the loudest cheerleader for them!

There are literally NO LIMITS to your capabilities if you can just get out of your own way. Screw what anyone else ever led you to believe. They were just offering you stinky fish!

Pippi and the Trip to New York, Part 2.

The image was drawn by Preston Wakeman. Pippi talking with Lumière.

(Cut to everyone hanging on pieces of wood while being drifted to a beach.)

Pippi: Is everyone alright?

Bigwig: (coughing) Barely!

(Cut to Mickey on the beach wringing out his hat.)

Mickey: Since everyone is alright do You know where we are?

(Mort throws up sand from his mouth as soon as he got up)

Mort: New (gags) York?

Bigwig: Does this look like New York to you? (Cut to the area which turns out to be a vast city with skyscrapers and billboards.)

Mort: Yes?

Fiver: It is lucky that we made it to our destination.

Pippi: You’re right Fiver!

Bigwig: Well, what are we standing here for? Let’s go already!

(Cut to Everyone staring in awe at the sights and buildings in the city.)

Ord: Look at all that food!

Mickey: The streets are cleaner than I thought they would be.

Fiver: OH MY GOSH!!

Bigwig: What is it fiver?! A vision?

Fiver: No! I saw a billboard that said diapers and baby wipes are fifty percent off! (Bigwig tried his best not to strangle Fiver)

Pippi: The sights are so beautiful!

Mort: THERE SHE IS! (Cut to the Statue of Liberty while Romeo and Juliet by Tchaikovsky play in the background. Mort imagines the Statue of Liberty winking at him and preparing to kiss him, But before that happens Bigwig slapped Mort to his senses.)

Mort: Sorry.

Ord: Gee there sure are a lot of buildings but no giant apples.

Pippi: Don’t worry Ord! As the person who brought us on this vacation, I am determined that all of our wishes will come true!

Bigwig: Well before that can we stop at a hotel to rest? My feet are killing me!

(Everyone went to a room in a hotel after Pippi gave the clerk a gold coin for payment. Mickey, Mort,

and Fiver are jumping on one of the beds while bigwig takes a shower.)

Mickey: Whoopee!

Mort: Wheeee!

Fiver: All this jumping is making me feel (gags) a bit nauseous… (Fiver threw up on the bed causing Mickey and Mort to hop off the bed. Bigwig with a towel around himself, a shower cap on his head, and a rubber ducky came out of the shower only to find the mess.)

Bigwig: Would you guys stop making so much noise?! It isn’t bad enough that Fiver had to puke on the bed but the constant screaming isn’t going to fix things!

Pippi: Mr. Nelson, could you take these sheets to the laundry room? Here’s some change…(Mr. Nelson grabbed the dirty sheets and headed to the laundry room only to use the change for snacks for himself instead.)

Pippi: While the sheets are being cleaned let’s watch some TV!

Newsman: We interrupted this program for some shocking news. A bad apple in the music industry is making his grand return right here in New York City for a concert after bribing the owner of the Big Apple Theater twenty bucks to host the show there. Stay tuned for more info.

Bigwig: This is boring! I wanna watch some war movies!

Mort: Well I want to watch The little ponies!

Fiver: It feels like there’s nothing on the television.

Ord: Say did you guys hear about the concert?

Bigwig: We already know that Einstein.

Ord: Well why don’t we go to that concert?

Pippi: That’s a great idea, Ord!

Fiver: Hold on Pippi I don’t think that’s a good idea.

Bigwig: For once Fivers right! Who knows if the singer in the concert would be a terrible person or a criminal?

Pippi: So what? We could still have a fun time once we get there today-

Mickey: Uhh guys you might want to see this… (Mickey showed that the date when the concert starts is tomorrow. Everyone except Bigwig and Fiver had a shocked expression on their faces.)

Everyone: WHAAAAAA?

Mickey: I’m just as disappointed as you guys are.

???: “Pssst hey you guys. Yes, you guys come here. (Everyone didn’t know what to do but Pippi not knowing the concept of stranger danger decided to look out the window to see who was calling them.)

** [P.S If someone you don’t know tells you to come here, tell them NO and run away to tell an adult you trust like a parent or a police officer about it!]

Pippi: Who are you?

Lumière: Bonjour my friends, it is I Lumière and I overhear you talking about a concert no?

Pippi: Well what a good coincidence! My friends and I want to go to a concert but the date says it will be coming out tomorrow and let’s just say some of my friends can’t wait for that long- (Cut to Mort chewing on the side of the bed, Mickey Scratching his face with foam in his mouth, and Ord huddled in a corner rocking back and forth sucking his thumb and having bloodshot eyes.) (Cut back to Pippi outside the window talking to Lumière.)

Pippi: -so let’s just say that waiting is very hard for us.

Lumière: Well then madam then you are in luck as I am inviting you to a totally legit not a scam or a trap of some kind early showing of The Kid from New Orleans!

Pippi: Wow sounds great! We’ll be there right now! Do you think you can toss a rope up here?

Lumière: Sure thing madam! (Lumière tosses up a long rope for the gang to climb down with. Pippi grabbed the rope and tied it to the side of the window. The gang climbed down one by one from smallest to biggest and once Ord got on to the rope, the rope snapped and Ord fell out of the window when Lumière wasn’t paying attention, Ord accidentally sat on top of Lumière splattering wax in the process. Luckily the gang remolded Lumière back together soon enough.)

Lumière: follow me to the show! (Bigwig hopped over to Pippi’s shoulder.)

Bigwig: I am very skeptical about the guy, I don’t know why but he seems suspicious- (Mort sings the Among us theme song.)

Bigwig: WILL YOU BE QUIET!!!!! (Mort zipped his lips as bigwig continued to talk to Pippi.)

Bigwig: What I mean is that it could be a trap.

Pippi: Oh nonsense Bigwig the walking candle knows where He’s going. (Bigwig hops off Pippi’s shoulder and follows them on foot.)

Bigwig: (sigh) (Pan over to the sign on the building saying Big Apple Theater.)

My Forgiveness Journey Part Four ~ Loyalty & Betrayal

Unpacking the facts & finishing my part of the puzzle.

Loyalty: a strong feeling of support or allegiance.

Betrayal: violation of a person’s trust or confidence

I was going to make these two separate posts, for fear it would be too long, but I think I can keep it short. I respect your time as much as mine…

I have had betrayal issues for as long as I can remember. As a girl, a person I trusted read my diary, & lied to me – up to last month when I went full circle and saw people who were my “Friends” – apparently weren’t.

“Who needs enemies with friends like mine?”

I’ve slowly been unpacking and breaking down situations and sitting in the facts. There is a fine line between Loyalty & Betrayal.

  • If someone hurt you, should your bestie become their friend? What if they didn’t know you were hurt?
  • What if someone hated someone you are close to, and made it their mission to destroy you out of association?
  • What if your friend struggles with acceptance issues and just needs to belong so they “Protected” you by befriending them behind your back?

My point is (before I give a million more scenarios) that I am more loyal than anyone I know. Fiercely loyal. I will fight tigers, climb volcanos & donate organs – kind of loyal. But my entire life I’ve had a flaw. I expect, hope, and pray that someone would be that for me. And since 99% of the world has their own ish, that isn’t a viable expectation.

As an enneagram 5, I live for facts! Facts are my favorite thing in the world. They help me sort out truth from emotional perception and I am so thankful that the few who are loyal to me, can sit me down to discuss “facts” to process the emotional triggers I have.

Conclusion: My journey has not only been for me to grow into the person the Lord needs me to be BUT also, I am a puzzle piece to MANY other lessons for other people. So what people decide to do with my hurts & betrayals is none of my business. It SUCKS and is UNFAIR and I have been grieving the friendships that were an illusion, but that part is their lesson. I am already moving on to the next chapter. My part in that puzzle is over.

To have clarity and peace over how betrayal has been haunting me is liberating.

Lastly, I am aware that EVERYTHING above is all Ego and Mind.

According to Deepak Chopra,

“You stop being ruled by self-image when:

  • You feel what you feel
  • You are no longer offended by things
  • You stop appraising how a situation makes you look.
  • You don’t exclude people you feel superior or inferior to
  • You quit worrying about what others think about you
  • You no longer obsess over money, status, and possessions
  • You no longer feel the urge to defend your opinions

By eliminating myself from the puzzle that I have already put my pieces into, I am able to check off 5 things above that I was wrestling with.

How do you work through betrayal?

So Very Thankful SunYay!

In my past life ~ (The job of 7 years that I just left) I would email my people once a week with a “Five FriYay Favs!” Sharing the top 5 things during that week. A grateful heart trumps so many yucks when it comes to your mind so there is no reason I cannot keep doing that ~ only with a different audience… YOU! And a different Day! We can call it SunYay! Which is pleasantly appropriate since I am “Sunshine Tiffany”.

Here it goes:

  • I am thankful that even though the prices at the grocery store are making me cringe, I can still afford to feed my family.
  • I am thankful for my diffuser that I swear has some mystical depression-buster ambiance that can turn my day around & just heal my soul at its core when I am struggling. (Currently Diffusing Watermelon, Red Berries.)
  • I am thankful for a surprise trip happening this weekend – A last-minute get-away with my husband before the kids go back to school!
  • And Lastly, I am thankful for the rain. The farmers here desperately need it after weeks of heat advisories and honestly, it also nurtures me from the inside out.

What is one thing you are thankful for?

My Forgiveness Journey, Part Three.

Feel the pain.

I am on the other side of some rough days. Over the past few days, I have been shown many things about toxic positivity and avoiding pain. (I will share a link below to a fantastic article from another blogger), but I had another “Tiffany Ephiphany!”

I had the most “AH-HA!” moment while reading Lysa Terkeurst’s book “Forgive what you can’t forget.”

“At some point, we need to stop imagining the way things “should be” so much that we can’t acknowledge what it is. You can only heal what you are willing to acknowledge is real.”

And it dawned on me, that not only have I been denying myself from “feeling” for a super long time, I’ve been caught up in how things SHOULD HAVE BEEN. What SHOULD have happened. How I SHOULD have been treated. What they SHOULD have done.

Feeling the Feelings

Yes, I have my bad days – REALLY bad days, but then I suppress the feelings and move forward.

  • I’m fine, I’m moving on.
  • I don’t have time or energy to deal with this, I’m over it.
  • I forgive them, the pain will fade eventually
  • God will take care of it.
  • I am going to focus on all the things I am thankful for.

I had to, I have responsibilities, kids, work, friends, and people who look to me to “Be The Sunshine.” It reminded me of Robin Williams. He was so full of Joy, always smiling and the light for millions of people. Yet inside had vast amounts of pain.

I have never just sat in my pain and felt it without distractions or interruptions. As my mom says, there is a little girl inside me who just needs to hear that her feelings are valid and allow her to grieve and feel that pain inside my body as long as she needs, to get it out.

All of this is so messed up because I am the FIRST one to tell my friends to FEEL what they are going through! Let it out! Work through the Emotional Scale. Unpack that baggage, your ticket is refundable and you need to work through this!

My Husband & I sat down with the kids and told them that Momma had some bad things happen in her life a long time ago and in order for me to properly heal, I need to face that sadness/anger/fear. This means, that over the next few weeks I may be crying or lost in thought, but it has NOTHING to do with them and it won’t last forever.

What Should have happened

Well, It DIDN’T! Nothing more to say about it, or think about it, or get mad about it.

End. Of. Story.

So cheers to healing and keeping the tissue companies in business.

Here is the Toxic Positivity article that I loved