Tag Archives: Autismawareness

My Autism Story, Part 7 – And Then There Were Two.

My whole world.

I remember taking Preston to the pediatrician and voicing concerns about Preston also showing signs of Autism. Maybe I had a heightened sense of awareness, maybe I was looking for it since I felt I had failed my first child when I didn’t know something was wrong.

At the appointment, the doctor walked in and said “Hello, I hear we have concerns that Preston has delays as well. I have NEVER heard of any family having more than one autistic child in their family, but let’s see what we’ve got here”

8 months later we had a second diagnosis.

I would also like to share that about a year later that same pediatrician said to me “It’s not surprising at all, I read about many families with multiple children on the spectrum” This is when I knew, I was paving the way in more ways than one.

The beautiful and terrible thing about Autism is that each person is different. What works for one, might not for another. Where one struggles, the next may excel. I know many parents hate when there are “Rain Man” references, but that is what was said a LOT to describe his personality. Especially in my eyes, he was BRILLIANT – compared to everything I had experienced with my daughter.

But with the good came the bad. My son wasn’t happy. At least with Trinity, there was laughter and smiles within “Trinity World”. She had joy. Preston seemed uncomfortable within his own skin. He had a constant state of anxiety or rage bubbling. He was quick to anger – not just to others, but to himself.

He also was frickin’ Houdini! He would run faster than Speedy Gonzales. After my first marriage ended, I was living in an apartment. I had a deadbolt lock, chain lock, AND a keyed lock from the inside (I wore the key around my neck). I remember one winter day I had just brought stuff home from the store and had to use the bathroom right away. I locked the deadbolt and chain, but couldn’t wait to do the key. I ran to the bathroom and less than a minute later I hear the door slam. I RAN! That little stinker pulled a dining room chair to the door, unlocked the locks, and ran away in less than 60 seconds – HE WAS 4 years old!! And he was gone! In a diaper, in the winter cold. I looked for 3 minutes and called the police right away! He was found 15 minutes after the police came and that was the scariest thing I’ve ever been through in my life.

I have a lot to share about my experiences with Preston, but I think it’s best to spread them out. Behavioral health is tricky and resources were nonexistent. He has had a hard journey and it wasn’t because he was bad. It was just how he was made. **Spoiler ** He turns out just fine. I just like to focus on the positives. We all have our ish right?!

These two were my only priority. I lived and breathed FOR them. If not me, then who?

#ThursdayAutismAwareness
I will be sharing Autism testimony every Thursday.
I have 21 years of experience.

My Autism Story, Part One.

My gift from the Lord himself.
My daughter Trinity was born on January 16th, 2002 at 12:34 pm.  As I held my daughter for the first time and saw a perfect little bundle of joy I couldn’t help, but imagine what it was going to be like as a first-time Mom.  I couldn’t wait to buy her a tutu and take her to dance class or to paint her nails and talk about love.  All I had ever wanted in life was to be a Mom and I was excited that it was about to begin.

Since Trinity was my first child it never occurred to me that she wasn’t acting “normal”.  I thought she was the best creation on earth, perfect in every way, and I did what I thought everyone was supposed to do.  I breastfed, made all of her baby food from scratch, read to her every day, took her to mentally stimulating places like the park and the zoo, and made sure she received all her immunizations.  I sat back and smiled as she learned to laugh, and even say “Mum Mum” and “ba ba” at six months of age.

 Then one day she changed.  She didn’t want to play “with” me.  She had nothing more to say, she was far away in another world.  She didn’t seem unhappy, just “somewhere” else.  At this point, I still wasn’t alarmed.  I just assumed it was another stage.  Maybe she was watching angels in the corner or while staring at the ceiling fan she was half in Heaven and half on earth.  I found it peaceful and majestic.  I thought she was taking in a great new world and absorbing all the minor details in wonderment.

Then one day my mother says to me “I think something is wrong.  I think you should ask her doctor about her milestones.”  It’s one of those moments in life when you remember exactly where you were and what you were doing, wearing, and eating.  I was in Arizona on the back patio of my parent’s winter getaway house.  Mom had bought a huge pot of Beautiful Geraniums.  It was what we were talking about before she brought it up.  Trinity was twirling in the grass nearby.

I sat in silence, tears running down my face.  I knew if my Mom was saying it, it had to be true. Later that week I found out my Mom isn’t’ the only one who thought something was wrong.  My mother-in-law had sent my husband at the time information regarding Aspergers.  I believe she wasn’t quite sure of how to bring it up to me I suppose.  I’m not sure how I felt about that exactly, but I do know a woman’s child is something she would fight tigers for, and in a situation like this, you don’t want to say  “I think your kid, that has become your whole world, is broken.”  Today I embrace her for trying to help gently by talking with her son.  Her heart is always in the right place, but at that time I was too overwhelmed with how my entire existence could possibly change.   

#ThursdayAutismAwareness
I will be sharing Autism testimony every Thursday.
I have 21 years of experience.